A deep dive into the Australian Cystic Fibrosis Data Registry (ACFDR)
Join our host CFA CEO Jo Armstrong along with Head, Clinical Outcomes Data Reporting and Research Program, Professor Susannah Ahern
The ACFDR is a vital tool for the CF community as it stimulates ground-breaking research, supports clinical teams to improve care, monitors the safety of new medicines and through the ACFDR Annual Report, gives people with CF and their families up-to-date information about the condition.
The ACFDR has been recording data since the working model was released in 1998.
As of 2022, the registry collects data from over 95% of the CF population in Australia.
We are excited to chat all about the ACFDR, its importance, how it supports ground-breaking research, and what the future holds for the registry.
We invite everyone to attend, including consumers, medical professionals, and researchers.
Please submit any questions you have here.
We look forward to welcoming you to this great session!